Comments for Breathing As A Family with Cystic Fibrosis

Comment on About CF by Blaine

Blaine — Fri, 09 Sep 2011 19:52:47 +0000

Hi,

We wanted to let you know about our new Everyday Health television series! Each episode profiles ordinary people who overcome extraordinary obstacles and who are helping others lead healthier, happier lives. Laila Ali, Ethan Zohn and Jenna Morasca will host the weekly program.

The 2nd episode is this Saturday, September 10th, on local ABC stations, and features an inspirational teenager who is determined to use the power of dance to raise awareness about Cystic Fibrosis, the disease that is threatening her life. For more details on the show, recap episodes and other information, check out:

http://www.everydayhealth.com/tv

We think the visitors of breathingasafamily.org will find Claire’s story to be fascinating and inspiring. Please let me know if you are able to share this story and point people to the site page so that we can give you a Twitter shout out to the Everyday Health community!

Happy Healthy Living!

Blaine Skrainka
Outreach Director
Everyday Health
blaine@everydayhealth.com
345 Hudson Street, 16th Floor
New York, New York 10014

Comment on About Us by 4 years since I last posted on toddhdow.org? That’s about to change! « Todd H Dow

Thu, 01 Sep 2011 14:41:44 +0000

[...] pro-choice discussion. The article specifically mentions Cystic Fibrosis. CF is a disease that is very personal to me, so, I’ll be wading into the bioethics, abortion and the pro-life / pro-choice discussion and [...]

Comment on I’m writing a book – “Cystic Diagnosis” by toddhdow

toddhdow — Thu, 12 May 2011 00:53:16 +0000

Thanks for the feedback Trish. I appreciate the note. I am working on the book. It is taking longer than I anticipated, but, I am working on it. I’ll provide an update on this blog sometime in June with my timeline to complete this work. May is reserved for Great Strides fundraising, but as soon as that’s done, I’ll be full speed ahead with book writing again.

Talk soon!

Todd

Comment on I’m writing a book – “Cystic Diagnosis” by Tricia Huss

Tricia Huss — Thu, 12 May 2011 00:09:18 +0000

Please write the book. My grand daughter was born with CF and I have searched everywhere for such a read. Can’t find it. I will bookmark this site and check back often. P.S. Love that Kindle is one of your favorite things!

Comment on Team Katie – Great Strides 2011 by Check out Breathing As A Family « Todd H Dow

Check out Breathing As A Family « Todd H Dow — Wed, 11 May 2011 15:19:43 +0000

[...] Here’s a video that provides a snapshot into Katie’s life: http://breathingasafamily.org/2011/03/29/team-katie-great-strides-2011/ [...]

Comment on CF in the news: “Surviving cystic fibrosis” in Macleans (Aug 31 2010) by SWhally

SWhally — Sun, 13 Feb 2011 21:22:37 +0000

R.I.P.Ashley.

Comment on CF in the news: “Surviving cystic fibrosis” in Macleans (Aug 31 2010) by SWhally

SWhally — Sun, 13 Feb 2011 21:21:41 +0000

My sad unfortunate news is that Ashley is now in heaven. Rip. We loved you.

Comment on I’m writing a book – “Cystic Diagnosis” by Duncan

Duncan — Wed, 05 Jan 2011 15:46:15 +0000

Great blog Todd.
I’ve really enjoyed reading your posts and hearing your perspective.
I work at Cystic Fibrosis Canda (the Canadian Cystic Fibrosis Foundation) office and your posts are such an effective way for creating awareness about CF. Making people understand that this disease effects kids, families, communities all across our country and more needs to be done to find cures and more effective treatments is something we are all striving for.
Keep up the good work!
Duncan

Comment on I’m writing a book – “Cystic Diagnosis” by Jennifer

Jennifer — Mon, 08 Nov 2010 16:58:54 +0000

As my newborn was just diagnosed with CF a week and a half ago, I would much appreciate your book now! I am looking for resources to help us in our new reality with CF – your outline is just what were looking for now to digest the medical information but more importantly what it is to actually live with CF. I look forward to hearing more. Good luck.

Comment on I’m writing a book – “Cystic Diagnosis” by thefirstmennonitechurch

thefirstmennonitechurch — Mon, 27 Sep 2010 23:39:53 +0000

Great idea and I like the outline. I always enjoy reading your blogs, so I know your book will be just as well written! I wonder about including a foreward or a preface where you address the fact that the person reading the book may still be in shock, coping with a diagnosis. In the weeks’ after Eugene’s diagnosis, we found a very helpful book ‘Cancer is a word not a sentence” where it addressed the feelings we had.

Also to affirm that not everyone has to be able to read the whole book, sometimes it’s too overwhelming, it’s OK to leave some chapters for later. Everyone’s journey is different.