Comments for Breathing As A Family with Cystic Fibrosis http://breathingasafamily.org Our story of living with Cystic Fibrosis Tue, 29 May 2012 04:46:27 +0000 hourly 1 http://wordpress.com/ Comment on Team Katie – Great Strides 2012 results! by toddhdow http://breathingasafamily.org/2012/05/27/team-katie-great-strides-2012-results/#comment-482 Tue, 29 May 2012 04:46:27 +0000 http://breathingasafamily.org/?p=262#comment-482 Elizabeth, thank you for the comment. We do appreciate the encouragement as we work to help make our daughter’s life a more healthy life. It seems like such an uphill battle at times, but we are motivated by hearing of others that are doing well in spite of this disease. How is your son doing? It would be great if you would be interested in sharing more about your family’s story…

Thanks again for the note and I hope to talk with you again soon!

Todd

]]> Comment on Team Katie – Great Strides 2012 results! by Elizabeth Clarke http://breathingasafamily.org/2012/05/27/team-katie-great-strides-2012-results/#comment-481 Tue, 29 May 2012 03:53:55 +0000 http://breathingasafamily.org/?p=262#comment-481 We were all touched by your tremendous efforts yesterday and over the past 3 years! We have a 24 year old son with CF and have walked down so many of your paths when he was little. He watched your video today and was amazed at your fund raising! Your daughter is truly beautiful. Feel free to contact us to be inspired to live for the future!

]]> Comment on Breathe by Matt Scales – song lyrics by Stephen Fitch http://breathingasafamily.org/2010/04/01/breathe-by-matt-scales-song-lyrics/#comment-431 Wed, 25 Jan 2012 05:22:44 +0000 http://breathingasafamily.org/2010/04/01/breathe-by-matt-scales-song-lyrics#comment-431 I have CF…I play in a band!! I really want to cover this song. Can anyone provide guitar tab or chords!!? Something?

]]> Comment on About CF by Blaine http://breathingasafamily.org/about-cf/#comment-304 Fri, 09 Sep 2011 19:52:47 +0000 http://breathingasafamily.wordpress.com/#comment-304 Hi,

We wanted to let you know about our new Everyday Health television series! Each episode profiles ordinary people who overcome extraordinary obstacles and who are helping others lead healthier, happier lives. Laila Ali, Ethan Zohn and Jenna Morasca will host the weekly program.

The 2nd episode is this Saturday, September 10th, on local ABC stations, and features an inspirational teenager who is determined to use the power of dance to raise awareness about Cystic Fibrosis, the disease that is threatening her life. For more details on the show, recap episodes and other information, check out:

http://www.everydayhealth.com/tv

We think the visitors of breathingasafamily.org will find Claire’s story to be fascinating and inspiring. Please let me know if you are able to share this story and point people to the site page so that we can give you a Twitter shout out to the Everyday Health community!

Happy Healthy Living!

Blaine Skrainka
Outreach Director
Everyday Health
blaine@everydayhealth.com
345 Hudson Street, 16th Floor
New York, New York 10014

FOLLOW US
twitter.com/everydayhealth
facebook.com/everydayhealth

]]> Comment on About Us by 4 years since I last posted on toddhdow.org? That’s about to change! « Todd H Dow http://breathingasafamily.org/about/#comment-301 Thu, 01 Sep 2011 14:41:44 +0000 #comment-301 [...] pro-choice discussion. The article specifically mentions Cystic Fibrosis. CF is a disease that is very personal to me, so, I’ll be wading into the bioethics, abortion and the pro-life / pro-choice discussion and [...]

]]> Comment on I’m writing a book – “Cystic Diagnosis” by toddhdow http://breathingasafamily.org/2010/09/27/im-writing-a-book-cystic-diagnosis/#comment-223 Thu, 12 May 2011 00:53:16 +0000 http://breathingasafamily.org/?p=106#comment-223 Thanks for the feedback Trish. I appreciate the note. I am working on the book. It is taking longer than I anticipated, but, I am working on it. I’ll provide an update on this blog sometime in June with my timeline to complete this work. May is reserved for Great Strides fundraising, but as soon as that’s done, I’ll be full speed ahead with book writing again.

Talk soon!

Todd

]]> Comment on I’m writing a book – “Cystic Diagnosis” by Tricia Huss http://breathingasafamily.org/2010/09/27/im-writing-a-book-cystic-diagnosis/#comment-222 Thu, 12 May 2011 00:09:18 +0000 http://breathingasafamily.org/?p=106#comment-222 Please write the book. My grand daughter was born with CF and I have searched everywhere for such a read. Can’t find it. I will bookmark this site and check back often. P.S. Love that Kindle is one of your favorite things!

]]> Comment on Team Katie – Great Strides 2011 by Check out Breathing As A Family « Todd H Dow http://breathingasafamily.org/2011/03/29/team-katie-great-strides-2011/#comment-218 Wed, 11 May 2011 15:19:43 +0000 http://breathingasafamily.org/?p=125#comment-218 [...] Here’s a video that provides a snapshot into Katie’s life: http://breathingasafamily.org/2011/03/29/team-katie-great-strides-2011/ [...]

]]> Comment on CF in the news: “Surviving cystic fibrosis” in Macleans (Aug 31 2010) by SWhally http://breathingasafamily.org/2010/09/20/cf-in-the-news-surviving-cystic-fibrosis-in-macleans-aug-31-2010/#comment-53 Sun, 13 Feb 2011 21:22:37 +0000 http://breathingasafamily.org/?p=95#comment-53 R.I.P.Ashley.

]]> Comment on CF in the news: “Surviving cystic fibrosis” in Macleans (Aug 31 2010) by SWhally http://breathingasafamily.org/2010/09/20/cf-in-the-news-surviving-cystic-fibrosis-in-macleans-aug-31-2010/#comment-52 Sun, 13 Feb 2011 21:21:41 +0000 http://breathingasafamily.org/?p=95#comment-52 My sad unfortunate news is that Ashley is now in heaven. Rip. We loved you.

]]>