Cystic Fibrosis, or CF, affects the lungs and the digestive system. CF is the most common, fatal, genetic disease affecting Canadian children and young adults. Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of Canadians with CF are expected to live into their 40s and beyond.

While life span has improved for patients with CF, quality of life is still an issue. Daily treatments, medication, clinic visits and health challenges are always present.

For us, when Katie is healthy, we do two treatment sessions a day with her. When she is sick (cold, flu, etc.), we do three or four treatment sessions with her.

Here’s a brief list of Katie’s regular medicine intake and treatment regimen:

  • approx 20 pills a day (enzymes – they help Katie digest food);
  • vitamin supplements twice a day;
  • 2 to 4 Pediasure nutrition supplement drinks each day;
  • Nebulizer + medicine – basically, a mist mask that Katie wears twice a day for 15 minutes each time;
  • Percussion treatment – 15 to 20 minutes of hitting her chest and back – twice a day;

Plus, the following “specialty items” when she is sick with a cold, flu or other sickness:

  • Oral antibiotics;
  • Additional medicine in her nebulizer from time to time as her health dictates;
  • Additional nebulizer and percussion treatment – typically 3 or 4 treatment sessions a day when she’s sick;

You can find out more about CF at the Cystic Fibrosis Canada.

One thought on “About CF

  1. Hi,

    We wanted to let you know about our new Everyday Health television series! Each episode profiles ordinary people who overcome extraordinary obstacles and who are helping others lead healthier, happier lives. Laila Ali, Ethan Zohn and Jenna Morasca will host the weekly program.

    The 2nd episode is this Saturday, September 10th, on local ABC stations, and features an inspirational teenager who is determined to use the power of dance to raise awareness about Cystic Fibrosis, the disease that is threatening her life. For more details on the show, recap episodes and other information, check out:

    http://www.everydayhealth.com/tv

    We think the visitors of breathingasafamily.org will find Claire’s story to be fascinating and inspiring. Please let me know if you are able to share this story and point people to the site page so that we can give you a Twitter shout out to the Everyday Health community!

    Happy Healthy Living!

    Blaine Skrainka
    Outreach Director
    Everyday Health
    blaine@everydayhealth.com
    345 Hudson Street, 16th Floor
    New York, New York 10014

    FOLLOW US
    twitter.com/everydayhealth
    facebook.com/everydayhealth

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