Team Katie – Great Strides 2016

Katie - Great Strides 2014Folks,

As many of you know, our daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time.

On Sunday May 29 2016, Cystic Fibrosis Canada will be hosting the annual “Carstar Walk to Make Cystic Fibrosis History” (formerly called “Great Strides”). We will be walking and invite you to join us for this annual event.

CF, which affects the lungs and the digestive system, is the most common, fatal, genetic disease affecting Canadian children and young adults. Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of Canadians with CF are expected to live into their 40s and beyond.

Katie deals with this disease on a daily basis through twice-a-day treatments (double these when she is sick!), daily dietary supplements, medication with all of her meals and snacks and constant concern for her well being, among other things.

While life span and quality of life have improved for patients with CF, there is still a real danger that our daughter will succumb to this disease sooner rather than later. We need your help to raise urgently needed funds that are used to raise awareness, fund research and advocate on behalf of CF patients across Canada.

Please watch our fundraising video from last year (Great Strides 2014 video), which provides a window into our world:

Each year, on the last Sunday in May, friends, family and co-workers of people with cystic fibrosis participate in the “Carstar Walk To Make Cystic Fibrosis History”, which is Cystic Fibrosis Canada’s largest national fundraising event. Walk with us on Sunday May 29 2016.

To assist, you can:

  1. Donate money;
  2. Donate and/or collect pledges and Walk with us on Sunday May 29; and/or
  3. Recruit others to join us in this fundraising event;

To join our team, “Team Katie”, and walk with us on May 29 at Safari Niagara in Stevensville, click here: Join Team Katie

To sponsor us directly in our fundraising efforts for Team Katie, click here: Sponsor Team Katie

We thank you for your support. Our wish is that one day, CF will stand for “Cure Found”.

Thanks!

Todd, Julie, Noah, Katie & Riley Dow

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Team Katie – Great Strides 2015

Katie - Great Strides 2014Folks,

As many of you know, our daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time.

On Sunday May 31 2015, Cystic Fibrosis Canada will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and invite you to join us for this annual event.

CF, which affects the lungs and the digestive system, is the most common, fatal, genetic disease affecting Canadian children and young adults. Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of Canadians with CF are expected to live into their 40s and beyond.

While life span has improved for patients with CF, quality of life is still an issue. Daily treatments, medication, clinic visits and health challenges are always present. When Katie is healthy, we do two treatment sessions a day with her. When she is sick (cold, flu, etc.), we do three or four treatment sessions each day with her.

Here’s a brief list of her regular medicine intake and treatment regimen:

  • approx 30 pills a day (enzymes – they help Katie digest food);
  • vitamin supplements;
  • 2 to 4 Pediasure nutrition supplement drinks each day;
  • Nebulizer + medicine – basically, a mist mask that Katie wears twice a day for 20 minutes each time;
  • Percussion treatment – 20 minutes of hitting her chest and back – twice a day;
  • Inhaled antibiotics – she’s been on this medicine pretty much non-stop for the last 6 months;

Plus, the following “specialty items” when she is sick with a cold, flu or other sickness:

  • Oral antibiotics;
  • Additional medicine in her nebulizer from time to time as her health dictates;
  • Additional nebulizer and percussion treatment – typically 3 or 4 treatment sessions a day when she’s sick;

Please watch our fundraising video from last year (Great Strides 2014 video), which provides a window into our world:

Each year, on the last Sunday in May, friends, family and co-workers of people with cystic fibrosis participate in “Great Strides”, which is Cystic Fibrosis Canada’s largest national fundraising event. Walk with us on Sunday May 31 2015.

To assist, you can:

  1. Donate money;
  2. Donate and/or collect pledges and Walk with us on Sunday May 31; and/or
  3. Recruit others to join us in this fundraising event;

To join our team, “Team Katie”, and walk with us on May 31 at Safari Niagara in Stevensville, click here: Join Team Katie

To sponsor us directly in our fundraising efforts for Team Katie, click here: Sponsor Team Katie

We thank you for your support. Our wish is that one day, CF will stand for “Cure Found”.

Thanks!

Todd, Julie, Noah, Katie & Riley Dow

Team Katie – Great Strides 2014

Katie - Great Strides 2014

Katie - Great Strides 2014Folks,

As many of you know, our daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time.

On Sunday May 25 2014, Cystic Fibrosis Canada will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and invite you to join us for this annual event.

CF, which affects the lungs and the digestive system, is the most common, fatal, genetic disease affecting Canadian children and young adults. Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of Canadians with CF are expected to live into their 40s and beyond.

While life span has improved for patients with CF, quality of life is still an issue. Daily treatments, medication, clinic visits and health challenges are always present. When Katie is healthy, we do two treatment sessions a day with her. When she is sick (cold, flu, etc.), we do three or four treatment sessions each day with her.

Here’s a brief list of her regular medicine intake and treatment regimen:

  • approx 30 pills a day (enzymes – they help Katie digest food);
  • vitamin supplements;
  • 2 to 4 Pediasure nutrition supplement drinks each day;
  • Nebulizer + medicine – basically, a mist mask that Katie wears twice a day for 20 minutes each time;
  • Percussion treatment – 20 minutes of hitting her chest and back – twice a day;
  • Inhaled antibiotics – she’s been on this medicine pretty much non-stop for the last 6 months;

Plus, the following “specialty items” when she is sick with a cold, flu or other sickness:

  • Oral antibiotics;
  • Additional medicine in her nebulizer from time to time as her health dictates;
  • Additional nebulizer and percussion treatment – typically 3 or 4 treatment sessions a day when she’s sick;

Please watch our Great Strides 2014 video, which provides a window into our world:

Each year, on the last Sunday in May, friends, family and co-workers of people with cystic fibrosis participate in “Great Strides”, which is Cystic Fibrosis Canada’s largest national fundraising event. Walk with us on Sunday May 25 2014.

To assist, you can:

  1. Donate money;
  2. Donate and/or collect pledges and Walk with us on Sunday May 25; and/or
  3. Recruit others to join us in this fundraising event;

To join our team, “Team Katie”, and walk with us on May 25 at Safari Niagara in Stevensville, click here: Join Team Katie

To sponsor us directly in our fundraising efforts for Team Katie, click here: Sponsor Team Katie

We thank you for your support. Our wish is that one day, CF will stand for “Cure Found”.

Thanks!

Todd, Julie, Noah, Katie & Riley Dow

Team Katie – Great Strides 2013 results!

Team Katie - Great Strides 2013 photo gallery
Team Katie – Great Strides 2013 photo gallery

To all Team Katie supporters,

Thank you so much for your generous contributions to Team Katie in support of the 2013 Great Strides fundraiser. We continue to be overwhelmed by the tremendous outpouring of generosity and encouragement that we’ve received from you, our friends, as we do what we can to help find a cure for Cystic Fibrosis.

This annual fundraiser has been a huge motivator for us. In many ways, we feel powerless to help Katie. Our fundraising efforts have been one of the key ways that we’ve had to focus our energy in a positive way to help Katie live a long, healthy life. The funds that we raise are efficiently used to support CF patients and to help find a cure.

Some numbers from this year:
Total money raised for Cystic Fibrosis Canada = $3,012,779+
Total money raised for the Niagara Great Strides Walk at Safari Niagara = $41,000+
Total money raised for Team Katie = $17,078+
Total sponsors for Team Katie = 190
Total Team Katie walkers today = 48+

You can see a slideshow of some pics from this weekend’s event here:
http://www.flickr.com/photos/toddhdow/sets/72157633843461981/show/

And, the complete flickr photo stream of the event is located here:
http://www.flickr.com/photos/toddhdow/sets/72157633843461981/

Your monetary contributions have been a huge source of inspiration for us and we thank you for that. Not only are you helping fund the fight to beat CF, but each of you have also given our family a boost – we live with CF on a daily basis. We try not to get down, and most of the time, we’re okay. But, sometimes it all catches up with us. The weight of a fatal disease in the family makes for some grim thoughts from time to time. But, we feel comfort knowing that we have so many friends that support us and rally behind us in this cause.

To everyone that has helped us this year, we thank you. Each of you, in contributing your time, money, thoughts and prayers are helping to save Katie’s life. And for that, we are eternally grateful.

Much love,

Todd, Julie, Noah, Katie & Riley

Team Katie – Great Strides 2013

Katie Dow - Team Katie 2012Folks,

As many of you know, our daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time.

On Sunday May 26 2013, Cystic Fibrosis Canada will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and invite you to join us for this annual event.

CF, which affects the lungs and the digestive system, is the most common, fatal, genetic disease affecting Canadian children and young adults. Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of Canadians with CF are expected to live into their 40s and beyond.

While life span has improved for patients with CF, quality of life is still an issue. Daily treatments, medication, clinic visits and health challenges are always present. When Katie is healthy, we do two treatment sessions a day with her. When she is sick (cold, flu, etc.), we do three or four treatment sessions each day with her.

Here’s a brief list of her regular medicine intake and treatment regimen:

  • approx 30 pills a day (enzymes – they help Katie digest food);
  • vitamin supplements;
  • 2 to 4 Pediasure nutrition supplement drinks each day;
  • Nebulizer + medicine – basically, a mist mask that Katie wears twice a day for 20 minutes each time;
  • Percussion treatment – 20 minutes of hitting her chest and back – twice a day;
  • Inhaled antibiotics – she’s been on this medicine pretty much non-stop for the last 6 months;

Plus, the following “specialty items” when she is sick with a cold, flu or other sickness:

  • Oral antibiotics;
  • Additional medicine in her nebulizer from time to time as her health dictates;
  • Additional nebulizer and percussion treatment – typically 3 or 4 treatment sessions a day when she’s sick;

Please watch our Great Strides 2013 video, which provides a window into our world:

Each year, on the last Sunday in May, friends, family and co-workers of people with cystic fibrosis participate in “Great Strides”, which is Cystic Fibrosis Canada’s largest national fundraising event. Walk with us on Sunday May 26 2012.

To assist, you can:

  1. Donate money;
  2. Donate and/or collect pledges and Walk with us on Sunday May 27; and/or
  3. Recruit others to join us in this fundraising event;

To join our team, “Team Katie”, and walk with us on May 26 at Safari Niagara in Stevensville, click here: Join Team Katie

To sponsor us directly in our fundraising efforts for Team Katie, click here: Sponsor Team Katie

We thank you for your support. Our wish is that one day, CF will stand for “Cure Found”.

Thanks!

Todd, Julie, Noah, Katie & Riley Dow

Team Katie – Great Strides 2012 results!

Team Katie - Great Strides 2012 photo gallery
Team Katie – Great Strides 2012 photo gallery

To all Team Katie supporters,

Thank you so much for your generous contributions to Team Katie in support of the 2012 Great Strides fundraiser. We continue to be overwhelmed by the tremendous outpouring of generosity and encouragement that we’ve received from you, our friends, as we do what we can to help find a cure for Cystic Fibrosis.

This annual fundraiser has been a huge motivator for us. In many ways, we feel powerless to help Katie. Our fundraising efforts have been one of the key ways that we’ve had to focus our energy in a positive way to help Katie live a long, healthy life. The funds that we raise are efficiently used to support CF patients and to help find a cure.

Some numbers from today:
Total money raised for Cystic Fibrosis Canada = $2,082,058+
Total money raised for the Niagara Great Strides Walk at Safari Niagara = $40,000+
Total money raised for Team Katie = $19,000+
Total sponsors for Team Katie = 251
Total Team Katie walkers today = 65

You can see a slideshow of some pics from this weekend’s event here:
http://www.flickr.com/photos/toddhdow/sets/72157629922562944/show/

And, the complete flickr photo stream of the event is located here:
http://www.flickr.com/photos/toddhdow/sets/72157629922562944/

Your monetary contributions have been a huge source of inspiration for us and we thank you for that. Not only are you helping fund the fight to beat CF, but each of you have also given our family a boost – we live with CF on a daily basis. We try not to get down, and most of the time, we’re okay. But, sometimes it all catches up with us. The weight of a fatal disease in the family makes for some grim thoughts from time to time. But, we feel comfort knowing that we have so many friends that support us and rally behind us in this cause.

To everyone that has helped us this year, we thank you. Each of you, in contributing your time, money, thoughts and prayers are helping to save Katie’s life. And for that, we are eternally grateful.

Much love,

Todd, Julie, Noah, Katie & Riley

Team Katie – Great Strides 2012

Katie Dow - Team Katie 2012Folks,

As many of you know, our daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time.

On Sunday May 27 2012, Cystic Fibrosis Canada will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and invite you to join us for this annual event.

CF, which affects the lungs and the digestive system, is the most common, fatal, genetic disease affecting Canadian children and young adults. Forty years ago, most children with CF did not live long enough to attend kindergarten. Today, half of Canadians with CF are expected to live into their 40s and beyond.

While life span has improved for patients with CF, quality of life is still an issue. Daily treatments, medication, clinic visits and health challenges are always present. When Katie is healthy, we do two treatment sessions a day with her. When she is sick (cold, flu, etc.), we do three or four treatment sessions each day with her.

Here’s a brief list of her regular medicine intake and treatment regimen:
– approx 30 pills a day (enzymes – they help Katie digest food);
– vitamin supplements;
– 2 to 4 Pediasure nutrition supplement drinks each day;
– Nebulizer + medicine – basically, a mist mask that Katie wears twice a day for 20 minutes each time;
– Percussion treatment – 20 minutes of hitting her chest and back – twice a day;
– Inhaled antibiotics – she’s been on this medicine pretty much non-stop for the last 6 months;

Plus, the following “specialty items” when she is sick with a cold, flu or other sickness:
– Oral antibiotics;
– Additional medicine in her nebulizer from time to time as her health dictates;
– Additional nebulizer and percussion treatment – typically 3 or 4 treatment sessions a day when she’s sick;

Please watch our Great Strides 2012 video, which provides a window into our world:

Each year, on the last Sunday in May, friends, family and co-workers of people with cystic fibrosis participate in “Great Strides”, which is Cystic Fibrosis Canada’s largest national fundraising event. Walk with us on Sunday May 27 2012.

To assist, you can:
1. Donate money;
2. Donate and/or collect pledges and Walk with us on Sunday May 27; and/or
3. Recruit others to join us in this fundraising event;

To join our team, “Team Katie”, and walk with us on May 27 at Safari Niagara in Stevensville, click here: Join Team Katie

To sponsor us directly in our fundraising efforts for Team Katie, click here: Sponsor Team Katie

We thank you for your support. Our wish is that one day, CF will stand for “Cure Found”.

Thanks!

Todd, Julie, Noah, Katie & Riley Dow

Team Katie – Great Strides 2011 results!

Team Katie - Great Strides 2011
Team Katie - Great Strides 2011

To all Team Katie supporters,

Thank you so much for your generous contributions to Team Katie in support of the 2011 Great Strides fundraiser. We continue to be overwhelmed by the tremendous outpouring of generosity and encouragement that we’ve received from you, our friends, as we do what we can to help find a cure for Cystic Fibrosis.

This annual fundraiser has been a huge motivator for us. In many ways, we feel powerless to help Katie. Our fundraising efforts have been one of the key ways that we’ve had to focus our energy in a positive way to help Katie live a long, healthy life. The funds that we raise are efficiently used to support CF patients and to help find a cure.

Some numbers from today:
Total money raised for the Canadian Cystic Fibrosis Foundation = $1,961,608+
Total money raised for the Niagara-Hamilton Great Strides Walk = $107,686
Total money raised for Team Katie = $17,154
Total sponsors for Team Katie = 243
Total Team Katie walkers today = 80

You can see a slideshow of some pics from this weekend’s event here:
http://www.flickr.com/photos/toddhdow/sets/72157626383527816/show/

And, the complete flickr photo stream of the event is located here:
http://www.flickr.com/photos/toddhdow/sets/72157626383527816/

Your monetary contributions have been a huge source of inspiration for us and we thank you for that. Not only are you helping fund the fight to beat CF, but each of you have also given our family a boost – we live with CF on a daily basis. We try not to get down, and most of the time, we’re okay. But, sometimes it all catches up with us. The weight of a fatal disease in the family makes for some grim thoughts from time to time. But, we feel comfort knowing that we have so many friends that support us and rally behind us in this cause.

To everyone that has helped us this year, we thank you. Each of you, in contributing your time, money, thoughts and prayers are helping to save Katie’s life. And for that, we are eternally grateful.

Much love,

Todd, Julie, Noah, Katie & Riley

Breathe Easy Nebulizer Mask Holder

Breathe Easy Nebulizer Mask Holder
Breathe Easy Nebulizer Mask Holder

All CF parents out there, you must check out this product: The Breathe Easy Nebulizer Mask Holder

What a great device! Julie found this online and ordered one. Order total = $31.50 which includes shipping. The device even came with an extra “Bubbles the Fish Pediatric Aerosol Mask”, which is a bonus so that we can rotate masks more often.

To use it, all you do is put the strap on your child’s head, adjust the fish mask on the face and then attach the nebulizer to the front of the mask. Easy as 1 2 3.

The product creator, Melissa, was motivated to make this mask holder for a friend’s child, who has CF. According to Melissa, “This mask holder was created for a friend of mine to help with her son’s breathing treatments. Her little boy has Cystic Fibrosis and must have multiple breathing treatments every day. She struggled with getting the nebulizer mask, with its flimsy elastic strap, to stay on his head securely.”

And, as an added bonus, Melissa will also donate a portion of any purchase referred by Breathing As A Family to Cystic Fibrosis Canada! Simply mention that you heard about this here (and mention Team Katie) during the checkout process (there is a spot for additional comments on Etsy when you place your order) and Melissa will do the rest.

Thanks to Melissa (mktdesigns on Etsy) for providing such a great product.

Please pass this along to any other CF families that you know!

Todd

Corporate Sponsors Needed for Team Katie!

Team Katie 2011
Team Katie 2011

Here’s a PDF copy of this letter Please spread the word!

Dear business owner,

As you may know, our daughter Katie Dow is a 4 year old Beamsville resident with Cystic Fibrosis. Team Katie is the group of family, friends and co-workers that are rallying around Katie to help find a cure to for Cystic Fibrosis and we are looking for corporate donations for the 2011 Great Strides Walk.

Please consider sponsoring Team Katie in the 2011 Great Strides walk, which will be held on May 29 2011 at Safari Niagara in Stevensville.

The cause: Help find a cure for Cystic Fibrosis

The need: Cash donations. Donations of goods or services will be:

  1. Auctioned or sold and the proceeds donated as cash; and/or
  2. Awarded as incentive prizes to Team Katie and/or CF Niagara walkers;

Note: 100% of the proceeds from all cash and/or donations will go directly to Cystic Fibrosis Canada via Team Katie as part of our 2011 Great Strides fundraising.

The recipient: Cystic Fibrosis Canada (which is a registered Canadian charity)

The business benefits of sponsoring Team Katie:

  1. Support a local charity need;
  2. Encourage a local family;
  3. Great marketing opportunity;

Marketing opportunities:

Team Katie communicates directly with over 500 individuals, many of whom are located in the Niagara region. This includes family, friends, co-workers and other supporters of Team Katie. This group of people is passionate about this cause and they are acutely aware of (and supportive of) the help that is provided by other Team Katie sponsors, including you!

We use multiple avenues to communicate with Team Katie supporters, including, but not limited to, the following:

Blog (http://breathingasafamily.org):

  • 3000+ page views since September 2010
  • 630 page views in April 2011 alone

Additional Social Media:

  • Team Katie email distribution list = 250+ supporters, almost all of whom are located within Niagara.
  • Facebook (Todd Dow): 450+ friends
  • LinkedIn (Todd Dow): 250+ followers
  • Twitter (toddhdow): 75+ followers

How your company will be recognized:

Walker level – for donations up to $500:

  1. Thank you notes will be sent via Team Katie social media (Twitter, Facebook, LinkedIn) & blog (breathingasafamily.org)
  2. 1 year placement in sponsor area on breathingasafamily.org
  3. Special mention at end of Great Strides campaign thank you email and blog post to Team Katie distribution list

Runner level – for donations from $500 to $2,500:

  1. All of the Walker level benefits; plus
  2. “Runner” level sponsorship placement on breathingasafamily.org in the right side navigation area right below “Support Team Katie” from time of sponsorship until February 28 2012
  3. I’ll create a Facebook fan page for your business and advertise it to my network to help raise your company profile

 Marathoner level – for donations over $2,500:

  1. All of the Runner level benefits; plus
  2. “Marathoner” premium sponsorship placement on the header (top of the page beside the site logo) of breathingasafamily.org
  3. “Marathoner” premium sponsorship placement on all emails that are sent on behalf of Team Katie and Breathing As A Family from time of sponsorship until February 28 2012

 If you are interested in donating $7,500 or more, please contact me directly. I’ll find a creative way to make that size of a donation worth your while (all of the above, plus web marketing consulting, website design, etc.) Trust me, it will be money well spent!

To support Team Katie:

  1. Sponsor Team Katie directly by clicking on the “Click here to donate to Team Katie” link on http://breatuingasafamily.org/ (under “Support Team Katie” at top right of the site);
  2. Email (toddhdow@gmail.com) or call (905.563.7195) Todd or Julie Dow directly to discuss additional donation options;

Thank you for your support,

Todd, Julie, Noah, Katie & Riley Dow